Schedule your presentation today - select "schedule" to choose the best date & time

PANS & Encephalitis (Advocacy & Education) for Kids in SC

PANS and Encephalitis resources & support

ABC 2020 Life with PANDAS (PANS). View this special report today,

ABC2020 highlights the fight families face getting their children diagnosed and treated and why this is sometimes considered a controversial diagnosis.

#PANS #AE #PANDAS 

PANS/PANDAS/Post Infectious Encephalitis

image15

  • PANDAS is short for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections —specifically group A strep. 


  • PANS is an acronym for Pediatric Acute-onset Neuropsychiatric Syndrome, which is associated with a variety of different infections


  • Post infectious encephalitis: Encephalitis is inflammation of brain. This inflammation can occur as a primary illness or as a result of some other illness, if encephalitis occurs after a bout of infection then it is called Post-Infectious Encephalitis



SYMPTOMS (include but not limited to)

image16

  • Obsessive-compulsive disorder (OCD) (obsessive, compulsive, and repetitive behaviors)
  • Tics/Movement disorder

With at least two of the following symptoms:

  1. Separation anxiety, anxiety, panic attacks
  2. Rages, screaming, irritability, and frequent mood changes
  3. Emotional and developmental regression
  4. Visual and/or auditory hallucinations
  5. Depression and suicidal thoughts
  6. Sensory sensitivity including to light, sound, and touch
  7. Deterioration of small motor skills or poor handwriting
  8. Math difficulties
  9. School refusal
  10. Hyperactivity or an inability to focus
  11. Memory problems/processing issues
  12. Trouble sleeping
  13. Food refusal, fear of choking or contamination, leading to weight loss or anorexia
  14. Joint pain
  15. Frequent urination/Bedwetting
  16. Catatonic state or depersonalization 

Community

image17

AUTOIMMUNE ENCEPHALITIS ORGANIZATIONS & INFORMATION

AE Alliance


PANS/PANDAS is a rule out diagnosis, ensure other forms of AE are ruled out before a clinical diagnosis is given. 

MAYO Clinic Encephalitis Panel


EDUCATIONAL CONSIDERATIONS

Wrights Law


PANS CANS and Automobiles, Jamie Candelaria Greene


PANDAS and PANS in the School Setting, Doran et al 


OCD AND PANDAS/PANS

NIMH (National Institute of Mental Health)


International OCD Foundation


TOURETTE SYNDROME

Tourette Syndrome Association of America


MENTAL HEALTH SUPPORT GROUPS

Depression and Bipolar Alliance

DBSA Support Groups


NAMI

NAMI (National Alliance on Mental Illness) 


SOUTH CAROLINA RESOURCES


Family Connections


South Carolina Medicaid Waivers